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NCRA Study Guide CTR 2024: Registry Organization & Operation

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NCRA Study Guide CTR 2024: Registry Organization & Operation Population-based cancer (central) registry can do the following: - Answer◦ Determination of cancer patterns among populations ◦ Patients diagnosed in independent path. labs ◦ Patients treated in independent cancer centers ◦ Research into cause of cancer ◦ Patients from private clinics & hospices ◦ Exploration of trends in cancer care ◦ Improving patient care programs ◦ Monitoring/Exploration of cancer trends overtime Population-based cancer (central) registry can do the following: - Answer◦ Death certificate info. from vital statistics registration system ◦ Patients diagnosed and/or treated for cancer at facility ◦ Creation of regional & state benchmarks for hospitals ◦ Advancing clinical, epidemiological, & health services research on cancer ◦ Active follow-up information on registered patients ◦ Guiding planning & evaluation of cancer control efforts to help prioritize health resource allocations The organization(s) involved in developing uniform data standards for hospital and population- based registries include - AnswerNorth American Association of Central Cancer Registries (NAACCR) Syntactic interoperability - AnswerData using the same coding system among two or more organizations Semantic interoperability - AnswerSharing a common meaning of a data representation among all the organization Tort - AnswerBreach of confidentiality ©FYNDLAY 2024/2025 ALL RIGHTS RESERVED. 2 | P a g e Law that covers wrongful acts that result in harm to another person, such as invasion of privacy Under what circumstances can confidential cancer registry data be made available? - AnswerTo provide follow up information to an approved facility Death clearance ensures that all persons with cancer on their death certificate are correctly ascertained by the central registry. Death clearance is performed ONLY by central cancer registries. - AnswerTrue Hospital-based cancer registries collect data for - AnswerPatients diagnosed and/or treated for a reportable disease process at their hospital. What registry collects information from several facilities that submit data to a central office? - AnswerCentral cancer registry The Automated Central Tumor Registry (ACTUR) of the United States Department of Defense and National Cancer Data Base (NCDB) is an example of a - AnswerNon-population based cancer (central) registry What registry collects information from multiple facilities not confined to a geographic area? - AnswerNon-population based cancer (central) registry Hospital based cancer registry examples - Answer◦ Hospital ◦ Network/Integrated ◦ Free-standing ◦Military ◦ Veterans Administration What registry collects information about all cancer patients in a particular institution? - AnswerHospital based cancer registry Hospital based cancer registry can do the following: - Answer◦ Active follow-up information on registered patients ◦ Patients diagnosed and/or treated for cancer at particular facility ◦ Evaluating clinical care & hospital administration ◦ Providing advocacy & educational opportunities to cancer patients ◦ Improving patient care programs Duty of care - AnswerSocially defined standard of care for the protection of others against unreasonable risks

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©FYNDLAY 2024/2025 ALL RIGHTS RESERVED.



NCRA Study Guide CTR 2024: Registry
Organization & Operation


Population-based cancer (central) registry can do the following: - Answer✔◦ Determination of
cancer patterns among populations
◦ Patients diagnosed in independent path. labs
◦ Patients treated in independent cancer centers
◦ Research into cause of cancer
◦ Patients from private clinics & hospices
◦ Exploration of trends in cancer care
◦ Improving patient care programs
◦ Monitoring/Exploration of cancer trends overtime
Population-based cancer (central) registry can do the following: - Answer✔◦ Death certificate
info. from vital statistics registration system
◦ Patients diagnosed and/or treated for cancer at facility
◦ Creation of regional & state benchmarks for hospitals
◦ Advancing clinical, epidemiological, & health services research on cancer
◦ Active follow-up information on registered patients
◦ Guiding planning & evaluation of cancer control efforts to help prioritize health resource
allocations
The organization(s) involved in developing uniform data standards for hospital and population-
based registries include - Answer✔North American Association of Central Cancer Registries
(NAACCR)
Syntactic interoperability - Answer✔Data using the same coding system among two or more
organizations
Semantic interoperability - Answer✔Sharing a common meaning of a data representation among
all the organization
Tort - Answer✔Breach of confidentiality


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, ©FYNDLAY 2024/2025 ALL RIGHTS RESERVED.


Law that covers wrongful acts that result in harm to another person, such as invasion of privacy
Under what circumstances can confidential cancer registry data be made available? -
Answer✔To provide follow up information to an approved facility
Death clearance ensures that all persons with cancer on their death certificate are correctly
ascertained by the central registry.


Death clearance is performed ONLY by central cancer registries. - Answer✔True

Hospital-based cancer registries collect data for - Answer✔Patients diagnosed and/or treated for
a reportable disease process at their hospital.
What registry collects information from several facilities that submit data to a central office? -
Answer✔Central cancer registry
The Automated Central Tumor Registry (ACTUR) of the
United States Department of Defense and National Cancer Data Base (NCDB) is an example of a
- Answer✔Non-population based cancer (central) registry
What registry collects information from multiple facilities not confined to a geographic area? -
Answer✔Non-population based cancer (central) registry
Hospital based cancer registry examples - Answer✔◦ Hospital
◦ Network/Integrated
◦ Free-standing
◦Military
◦ Veterans Administration
What registry collects information about all cancer patients in a particular institution? -
Answer✔Hospital based cancer registry
Hospital based cancer registry can do the following: - Answer✔◦ Active follow-up information
on registered patients
◦ Patients diagnosed and/or treated for cancer at particular facility
◦ Evaluating clinical care & hospital administration
◦ Providing advocacy & educational opportunities to cancer patients
◦ Improving patient care programs
Duty of care - Answer✔Socially defined standard of care for the protection of others against
unreasonable risks

2|Page

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