Importance of Cancer Registries

Importance of Cancer Registries


Importance of Cancer Registries
Purpose of Cancer Registries
 Collection, management, and analysis of data on persons
with the diagnosis of a malignant neoplasm and other
neoplastic diseases
 Data used for cancer control, epidemiological research,
analysis, public health program planning, and patient care
improvements
Types of Cancer Registries
 Cancer registries are a type of health registry
 Hospital-based registries collect data on patients treated at
their facility
SEER Program
 SEER stands for Surveillance, Epidemiology, and End
Results
 Started collecting cancer data in 1973
Data Set
 A complete collection of items maintained by a registry
History of Cancer Registries
 Cancer was first mentioned as a cause of death in 1629 in
England

,  Oldest modern cancer registry is in Germany
 First US population-based cancer registry was in
Connecticut
Federal Agencies
 National Cancer Institute (NCI) collects data on cancer
occurrence, treatment type, and outcomes
 Centers for Disease Control and Prevention (CDC) may
affect cancer registry operations
Cancer Registries Act of 1992
 Requires states to establish and enforce certain regulations
 Regulations include reporting of newly diagnosed cancer
cases, reporting by healthcare practitioners, and use of
standardized reporting formats
Accredited Programs and Organizations
Accredited Programs
 CSSP Cancer Surgery Standards Program: Implements
surgery standards
 ACoS Am. College of Surgeons: Improves cancer patient
care
 CoC Comm on Cancer: Improves survival and quality of
life
 NAPBC: Monitors quality of care and outcomes
 NAPRC: Promotes appropriate care with a
multidisciplinary approach