Gatlinburg Conference
on Research and Theory in Intellectual and Developmental Disabilities
Proceedings of the 45th Annual Gatlinburg Conference
March 7-9, 2012 • loews Annapolis Hotel • Annapolis • maryland
Rare and Neglected IDD Disorders:
A Case Study in 15q
, THANK YOU!
The Gatlinburg Conference especially thanks the following institutions for
their financial contributions and generous support of the 2012 conference:
• The Eunice Kennedy Shriver National Institute of Child Health and
Human Development
• The American Psychological Association–Division 33
• The Schiefelbusch Institute for Life Span Studies, University of Kansas
• Kennedy Krieger Institute
• The Eunice Kennedy Shriver Center, University of Massachusetts
Medical School
• The Waisman Center, University of Wisconsin-Madison
• The Vanderbilt Kennedy Center, Vanderbilt University
Cover Art: The Parrots by Bernadette Resha
, 45th Annual
Gatlinburg Conference
On Research and Theory in Intellectual and Developmental Disabilities
Loews Annapolis Hotel • Annapolis • Maryland
March 7-9, 2012
This volume contains abstracts for invited talks, symposium papers, and poster presentations at the
45th Annual Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities.
Permission to quote or reprint any of these materials must be obtained from the author(s).
• e X E C U T I V E c O MM I T T E E •
Leonard Abbeduto Frank Floyd
University of California–Davis University of Hawaii
Don Bailey Susan Hepburn
RTI International University of Colorado-Denver
Shannon S. C. Bert Marygrace Yale Kaiser
University of Oklahoma Eureka College
James Bodfish Connie Kasari
University of North Carolina University of California-Los Angeles
John Borkowski William MacLean
University of Notre Dame University of Wyoming
Brian Boyd Marsha Mailick Seltzer
University of North Carolina-Chapel Hill University of Wisconsin–Madison
Frances Conners Richard Serna
University of Alabama University of Massachusetts–Lowell
Elisabeth Dykens, Conference Chair Wayne Silverman
Vanderbilt University Johns Hopkins University School of Medicine
Deborah Fidler Steven Warren
Colorado State University University of Kansas
• the m e c O MM I T T E E •
Elisabeth Dykens Deborah Fidler Susan Hepburn-Chair Steven Warren
Vanderbilt University Colorado State University University of Colorado-Denver University of Kansas
• CONFERENCE COORDINATION •
Laura McLeod – Conference Manager
Vanderbilt University
Ellen Margulies – Conference Co-Manager
Vanderbilt University
• CONFERENCE SUPPORT •
This conference is supported by grant number R13 HD38335 from the
Eunice Kennedy Shriver National Institute of Child Health and Human Development.
Additional support provided through generous donations from:
The American Psychological Association-Division 33 • Kennedy Krieger Institute • The University of Kansas
The University of Massachusetts Medical School • The University of Wisconsin-Madison • Vanderbilt University
Brookes Publishing • Noldus Information Technology
, Ta b l e o f C o n t e n t s
program at a glance.......................................................................................................................................... 3
award recipients................................................................................................................................................... 4
exhibitors................................................................................................................................................................... 7
plenary speakers and nih SESSIONS ........................................................................................................... 8
detailed conference program................................................................................................................. 10
wednesday presentations
afternoon
Symposium 1: Latino Families with Children with Disabilities and Risk: Understanding Culture, Needs, and Innovative
Support Processes............................................................................................................................................................................ 23
Symposium 2: Mindfulness-Based Stress Reduction: Introducing the World of Zen to I/DD............................................. 29
Symposium 3: Basic and Applied Research in Reading of Children with Intellectual and Developmental Disabilities
(I/DD)............................................................................................................................................................................................... 35
Symposium 4: Premutation Carriers of FMR1 Gene Expansions: Prevalence, Language Profiles, and Health................. 41
Symposium 5: Co-Morbid Features in PWS, ASD, and 15q Disorders................................................................................... 47
Symposium 6: Social Anxiety and Stress in Neurodevelopmental Disorders......................................................................... 53
evening
Poster Session 1............................................................................................................................................................................... 59
THURsday presentations
morning
Symposium 7: Multi-Modal and Multi-Method Approaches to Assessment and Intervention for SIB.............................. 89
Symposium 8: Biobehavioral Investigations of Temperament in Fragile X, Williams, and 7q11.23 Duplication
Syndromes........................................................................................................................................................................................ 97
Symposium 9: Mining Public Health Data for IDD Research................................................................................................. 103
Symposium 10: Adult Aging with Down Syndrome................................................................................................................ 109
Symposium 11: Evaluating Reading Interventions for Children with Down Syndrome..................................................... 117
Symposium 12: Translational Analysis and Treatment of Chronic Aberrant Behavior-Transition States, Behavioral
Economics, and Idiosyncratic Functions................................................................................................................................... 123
evening
Poster Session 2............................................................................................................................................................................. 129
friday presentations
morning
Symposium 13: More Positive Than Negative…The Study of Families in Context. A Special Presentation Honoring
Laraine Glidden at Gatlinburg Conference 2012 ..................................................................................................................... 163
Symposium 14: Uses of Eye Tracking/Pupillometry to Enrich Understanding of Information and Sensory Processing
in Individuals with ID................................................................................................................................................................... 165
index...........................................................................................................................................................................171
2
on Research and Theory in Intellectual and Developmental Disabilities
Proceedings of the 45th Annual Gatlinburg Conference
March 7-9, 2012 • loews Annapolis Hotel • Annapolis • maryland
Rare and Neglected IDD Disorders:
A Case Study in 15q
, THANK YOU!
The Gatlinburg Conference especially thanks the following institutions for
their financial contributions and generous support of the 2012 conference:
• The Eunice Kennedy Shriver National Institute of Child Health and
Human Development
• The American Psychological Association–Division 33
• The Schiefelbusch Institute for Life Span Studies, University of Kansas
• Kennedy Krieger Institute
• The Eunice Kennedy Shriver Center, University of Massachusetts
Medical School
• The Waisman Center, University of Wisconsin-Madison
• The Vanderbilt Kennedy Center, Vanderbilt University
Cover Art: The Parrots by Bernadette Resha
, 45th Annual
Gatlinburg Conference
On Research and Theory in Intellectual and Developmental Disabilities
Loews Annapolis Hotel • Annapolis • Maryland
March 7-9, 2012
This volume contains abstracts for invited talks, symposium papers, and poster presentations at the
45th Annual Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities.
Permission to quote or reprint any of these materials must be obtained from the author(s).
• e X E C U T I V E c O MM I T T E E •
Leonard Abbeduto Frank Floyd
University of California–Davis University of Hawaii
Don Bailey Susan Hepburn
RTI International University of Colorado-Denver
Shannon S. C. Bert Marygrace Yale Kaiser
University of Oklahoma Eureka College
James Bodfish Connie Kasari
University of North Carolina University of California-Los Angeles
John Borkowski William MacLean
University of Notre Dame University of Wyoming
Brian Boyd Marsha Mailick Seltzer
University of North Carolina-Chapel Hill University of Wisconsin–Madison
Frances Conners Richard Serna
University of Alabama University of Massachusetts–Lowell
Elisabeth Dykens, Conference Chair Wayne Silverman
Vanderbilt University Johns Hopkins University School of Medicine
Deborah Fidler Steven Warren
Colorado State University University of Kansas
• the m e c O MM I T T E E •
Elisabeth Dykens Deborah Fidler Susan Hepburn-Chair Steven Warren
Vanderbilt University Colorado State University University of Colorado-Denver University of Kansas
• CONFERENCE COORDINATION •
Laura McLeod – Conference Manager
Vanderbilt University
Ellen Margulies – Conference Co-Manager
Vanderbilt University
• CONFERENCE SUPPORT •
This conference is supported by grant number R13 HD38335 from the
Eunice Kennedy Shriver National Institute of Child Health and Human Development.
Additional support provided through generous donations from:
The American Psychological Association-Division 33 • Kennedy Krieger Institute • The University of Kansas
The University of Massachusetts Medical School • The University of Wisconsin-Madison • Vanderbilt University
Brookes Publishing • Noldus Information Technology
, Ta b l e o f C o n t e n t s
program at a glance.......................................................................................................................................... 3
award recipients................................................................................................................................................... 4
exhibitors................................................................................................................................................................... 7
plenary speakers and nih SESSIONS ........................................................................................................... 8
detailed conference program................................................................................................................. 10
wednesday presentations
afternoon
Symposium 1: Latino Families with Children with Disabilities and Risk: Understanding Culture, Needs, and Innovative
Support Processes............................................................................................................................................................................ 23
Symposium 2: Mindfulness-Based Stress Reduction: Introducing the World of Zen to I/DD............................................. 29
Symposium 3: Basic and Applied Research in Reading of Children with Intellectual and Developmental Disabilities
(I/DD)............................................................................................................................................................................................... 35
Symposium 4: Premutation Carriers of FMR1 Gene Expansions: Prevalence, Language Profiles, and Health................. 41
Symposium 5: Co-Morbid Features in PWS, ASD, and 15q Disorders................................................................................... 47
Symposium 6: Social Anxiety and Stress in Neurodevelopmental Disorders......................................................................... 53
evening
Poster Session 1............................................................................................................................................................................... 59
THURsday presentations
morning
Symposium 7: Multi-Modal and Multi-Method Approaches to Assessment and Intervention for SIB.............................. 89
Symposium 8: Biobehavioral Investigations of Temperament in Fragile X, Williams, and 7q11.23 Duplication
Syndromes........................................................................................................................................................................................ 97
Symposium 9: Mining Public Health Data for IDD Research................................................................................................. 103
Symposium 10: Adult Aging with Down Syndrome................................................................................................................ 109
Symposium 11: Evaluating Reading Interventions for Children with Down Syndrome..................................................... 117
Symposium 12: Translational Analysis and Treatment of Chronic Aberrant Behavior-Transition States, Behavioral
Economics, and Idiosyncratic Functions................................................................................................................................... 123
evening
Poster Session 2............................................................................................................................................................................. 129
friday presentations
morning
Symposium 13: More Positive Than Negative…The Study of Families in Context. A Special Presentation Honoring
Laraine Glidden at Gatlinburg Conference 2012 ..................................................................................................................... 163
Symposium 14: Uses of Eye Tracking/Pupillometry to Enrich Understanding of Information and Sensory Processing
in Individuals with ID................................................................................................................................................................... 165
index...........................................................................................................................................................................171
2
