Questions and Correct Answers
What is family-centred care (FCC)? ✅- partnership approach to healthcare decision-
making
- considers the needs of all family members (not just the child)
What are the 2 basic concepts of FCC? ✅1. enabling - allows for family members to
display their current abilities and acquire new ones
2. empowerment - assists families to maintain or acquire a sense of control over their
lives, make positive changes, foster own strengths
Describe the 5 general principles of FCC? ✅1) Information Sharing
a. The exchange of information is open, objective, and unbiased
b. It is presented in a way that patients and families understand
2) Respect and Honoring Differences
a. The working relationship is marked by respect for diversity of cultural and linguistic
traditions, and care preferences
3) Partnership and Collaboration
a. Medically appropriate decisions that best fit the needs, strengths, values, and abilities
of all involved are made together by involved parties, including families at the level they
choose
b. Working with patients to help change the healthcare system for the better
4) Negotiation
a. The desired outcomes of medical care plans are flexible and not necessarily absolute
5) Care in Context of Family and Community
a. Direct medical care and decision-making reflect the child within the context of his/her
family, home, school, daily activities, and quality of life within the community
What are some barriers to FCC? ✅- understanding family centered care
- support for practices
- research
Describe the role of the family in in-patient care and discharge planning. ✅· Family
presence at beside rounds or procedures
· Family advocacy - family share in the control of the management plan
· Family members must participate in the discussion and decision making
· 80-95% of families prefer teaching and care discussions to occur at bedside
· Family-centred rounds (FCR) important component of medical education
, What is atraumatic care? ✅The use of interventions that eliminate or minimize
psychological and physical distress or trauma that is experienced by children and
families in the health care system.
What are the 3 principles of atraumatic care? ✅(1) Prevent or minimize the child's
separation from the family;
(2) Promote a sense of control; and
(3) Prevent or minimize bodily injury and pain
Why is atraumatic care important? ✅It can eliminate and minimize the experience of
psychological and physical distress in children and families during the healthcare
process
List/describe strategies to promote atraumatic care in practice. ✅· Fostering the
parent-child relationship during hospitalization
· Preparing the child before any unfamiliar treatment or procedure
· Controlling pain
· Allowing the child privacy
· Providing play
· Activities for expression of fear and aggression
· Offering choices to children
· Respecting cultural differences
What is a "mature minor?" ✅A child under 18 who has the capacity to fully appreciate
the nature and consequences of a proposed health treatment is capable of of giving
informed consent
What is informed consent? ✅- It is required prior to any treatment (by law)
- Patients (or substitute decision-makers), must be given information about the
treatment proposed, its risks and benefits, and alternative courses of action (including
non-treatment)
What is the relationship between informed consent and FCC? ✅- Enhances FCC
- Opportunity for HCPs to enhance parents' decision-making abilities by providing the
best information available about their child's condition and prognosis, the treatment
recommended and the alternatives, in understandable terms
- Relates back to the FCC core principle of information sharing
Describe parental authority and its relationship to informed consent for a child. ✅-
Since younger minors don't meet the criteria to provide consent, a substitute decision
maker (usually the parent / guardian), has legal authority to consent to or refuse
treatment
-For children to provide consent they must (1) be competent ("decisionally capable") /
they must understand the nature and consequences of the recommended treatment,