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The accession registrar includes: - Accession & sequence number
- Date of initial diagnosis
- Patient name
- Primary site
- Facility identifier
The accession register can be used to: - Assess registry workload
- Estimates of yearly caseload throughout the year
- Audit other files
- Monitor casefinding
- Plan cancer conferences
- Determine proper proportions of sites to be discussed at conference
- Select cases randomly for quality control review
Patient index An alphabetical list of all patients entered into registry database since the
reference date
- Also called a "master patient index" or "MPI"
The patient index must contain the following information: - DOB
- date of dx
- date of last contact/ death
- histology
- laterality
, - medical record number
- patient name
- primary site(s)
- sequence number
- sex
- facility identifiers ** if registry serves multiple facilities **
Abstract Abbreviated record that summarizes pertinent information about the patient,
cancer diagnosis, cancer treatment, and outcomes (lifetime follow- up)
Major identification components of an abstract: - Patient identification
- Cancer identification
- Stage of disease at dx
- First course of treatment
- Outcomes
- Case administration descriptors
Lifetime follow- up - Unique function of a cancer registry; no other disease registry follows
patient for remainder of their lifetime
- Provides complete patient history
- Enables registry to provide accurate survival statistics
Follow-up data that is collected in the abstract includes: - Cancer status
- Date of first recurrence
- Date of last contact/ death
- Following registry (multiple facilities)