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Lecture notes Contexts of Care (SHN169)

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Lecture notes on Psychological effects of illness and hospitalisation on CYP

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SHN169 – Psychological Effects of Illness and Hospitalisation on CYP


The psychological effects of Illness and Hospitalisation on CYP (From Birth to
Adolescence)

Introduction
 Hospitalisation/illness is a potentially traumatic experience for all children
o This is regardless of whether the visit to hospital was expected or illness is
something they experience regularly
 Disruption to routines
 Hospital/illness poses a real or imagined threat
 May react at any stage preadmission, during their stay, following discharge
 See: Ben Amitay et al 2006; Jaaniste et al 2007; Foley 2000; Bossert 1994)
 The effects will have a significant impact on the child
 Responses and coping will mirror cognitive development
 Child’s concept of illness is more important than age and intellect
 Coping is dependant on a number of factors – age, information, experience (how
often have they had of medical/hospital settings), culture
o Consider whether English is the child’s primary language. If not how can you
more effectively communicate with that child (and also their family)
 See: Gordon et al 2010; Jaaniste et al 2007; Coyne 2006)

Learning Outcomes
 Aim:
o To enable the student to develop an understanding of the specific effects of
hospitalisation on the child and the young person
 Learner Outcomes:
o Identify the specific effects of hospitalisation on the infant; the pre school
child, the school aged child and the adolescent.
o Outline how these effects may affect the development of the child and
adolescent
o Discuss how these effects may be minimized
o Discuss how the child/young person and family may be supported to
minimize these effects

History of effects
 Why is knowing the history of effects important?
o Learning from the past; not just what not to do but also what is good practice
 George Armstrong 1769 – role of parents
 Catherine Wood 1888 – specialist nurses
 West – establishment of GOSH
 Spence 1926 – role of parents
 Spitz 1945 – coined term hospitalisation
 Levy 1947 – effects of surgery on children
 Bowlby 1952 – maternal deprivation hypothesis
o Following the events of WWII and the separation of children from parents
(orphaned due to the war)
o Need to keep children and parents together


1

, SHN169 – Psychological Effects of Illness and Hospitalisation on CYP


 Robertson 1953 – practical application of Bowlby’s theory
o Looked at how children coped in nurseries and also hospital settings
o Drove forward government investigation into children and hospital settings
(Platt Report)
 NAWCH 1961 – lobbied for better conditions
 Wolfer & Visintainer 1976 – 5 categories of effects
 Robertson 1989 – environment & care delivery criticised
 Sainsbury and Cleary: Care by parent

Policy perspective
 Platt report 1959
o First government report looking at the experiencing and care of children in
hospital
o First to recommend that parents remained with children
o Need for specialist nurses trained in the care of children
 This didn’t come into practice until 1991 (2 RCN’s)
 Court Report 1976 – Fit for the future
 Welfare of Children & young people in hospital 1991
 Just for the Day: Rosemary Thorne
o Day surgery – minimising the time that children had to spend in a hospital
setting
 DoH 2004 – NSF
 DoH 2007 Making it Better
 DoH 2009: Healthy Lives Brighter Futures.

Why do we need to know?
 Understand the impact of hospital
 Insight into the child’s understanding
 Provide appropriate care for the child
 Provide ways to minimize the effects
o E.g. keeping the same routine that the child has had home (i.e. if they
normally have a bath before bed then schedule their bath to take place then
and not earlier during the day)
 Work with family to minimize the effects
o Providing family with support to ease their worries and concerns so they in
turn can help the child deal with their worries
 Provide anticipatory guidance and support
o Give realistic advice on what to expect; what the child might experience
 Takes into account holistic nature of the experience
o Recognising that the child is an individual

0-1 years
 Neonates
o Attachment issues
 Key component to consider.
 Need to be promoting ways for parents to form attachments:
 Physically

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