Chapter 19: Family-Centered Care of the Child with Chronic Illness or Disability

MULTIPLE CHOICE 1. What is the major health concern of children in the United States? a. Acute illness b. Chronic illness c. Congenital disabilities d. Nervous system disorders ANS: B An estimated 18% of children in the United States have a chronic illness or disability that warrants health care services beyond those usually required by children. Chronic illness has surpassed acute illness as the major health concern for children. Congenital disabilities exist from birth but may not be hereditary. These represent a portion of the number of children with chronic illnesses. Mental and nervous system disorders account for approximately 17% of chronic illnesses in children.DIF: Cognitive Level: Understanding REF: p. 761 TOP: Nursing Process: Planning MSC: Client Needs: Health Promotion and Maintenance 2. What is a major premise of family-centered care? a. The child is the focus of all interventions. b. Nurses are the authorities in the child’s care. c. Parents are the experts in caring for their child. d. Decisions are made for the family to reduce stress. ANS: C As parents become increasingly responsible for their children, they are the experts. It is essential that the health care team recognize the family’s expertise. In family-centered care, consistent attention is given to the effects of the child’s chronic illness on all family members, not just the child. Nurses are adjuncts in the child’s care. The nurse builds alliances with parents. Family members are involved in decision making about the child’s physical care. DIF: Cognitive Level: Analyzing REF: p. 762 TOP: Nursing Process: Assessment MSC: Client Needs: Health Promotion and Maintenance 3. What should the nurse determine to be the priority intervention for a family with an infant who has a disability