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Question Answer
Conducting an online focus group with
Which of the following examples of using
cancer survivors to determine familial
the internet to conduct research meets the
support systems. The researcher also
federal definition of research with human
invites subjects’ significant others to be a
subjects?
part of the focus group.
The investigator uses the informed
consent process to explain how
Which of the following methods could be
respondent data will be transmitted from
considered a “best practice” in terms of
the website to his encrypted database
informing respondents how their answers
without ever recording respondents’ IP
to an on-line survey about personal
addresses, but explains that on the
information will be protected?
Internet confidentiality cannot be
absolutely guaranteed.
The investigator uses the informed
Which of the following methods could be
consent process to explain how
considered a “best practice” in terms of
respondent data will be transmitted from
informing respondents how their answers
the website to his encrypted database
to an online survey about personal
without ever recording respondents’ IP
information will be protected?
addresses, but explains that on the
, Internet confidentiality cannot be
absolutely guaranteed.
Consent to participate in research is an
ongoing process. Which of the following
Designing the survey so that subjects are
strategies would help ensure that
not forced to answer one question before
participation in a survey about a sensitive
going to the next.
personal topic remains voluntary
throughout a study?
To minimize potential risks of harm, a
Design the survey so that no direct or
researcher conducting an online survey
indirect identifiers are collected.
can:
The Internet can be used as a research tool
or as the object of a study. Which of the An investigator uses his Facebook wall to
following examples best describes an post a URL link to a survey he is hosting on
investigator using the Internet as a research SurveyMonkey.
tool?
The federal regulations define both a Analyzing the number of visits to a website
human subject and research separately, provides information about the website
but both definitions must be met to qualify itself not about the people who visit it and
as human subjects research. Thus, does not meet the federal definition of
research with human subjects is defined as research with human subjects. Neither
a systematic investigation (intent to does gathering information about
contribute to generalizable knowledge) deceased individuals. Using data that is
,involving living individuals about whom a publically available and de-identified is no
researcher conducting research obtains longer private or personally identifiable,
information through intervention or and would also not meet the federal
interaction with the individual, and uses, definition of research with human
studies, or analyzes the information or subjects.
obtains, uses, studies, analyzes or
generates identifiable private information
(Protection of Human Subjects 2018).
Conducting an online focus group with live
human beings to research familial support
systems would therefore meet the
definition of research with human subjects.
Voluntary participation in research includes
the right to withdraw from a study at any
time and the right to choose not to answer Providing contact information for the
questions. Online surveys that force researcher, privacy policies, and a
subjects to answer one question before description of the survey are important,
going to the next violate the requirement but they do not address the requirement.
that all participation in research is
voluntary.
Which of the following online research A researcher proposes to join a moderated
strategies raises the most concerns support group for cancer survivors posing
regarding the ethical principle of respecting as a survivor. She plans to insert
, the autonomy of research subjects and the comments to see how the members
corresponding federal regulations requiring respond.
informed consent?
The study in which the researcher pretends When a support group or a blog is open to
to be a cancer survivor involves deception any and all readers, it can be argued that
and research without any informed consent the communications posted are not
process. Therefore, the study raises intended to be private and can therefore
concerns about the ethical principle of be observed and recorded without
respect for persons. Any compromise of the informed consent. The researcher
principle should be justified by any studying interracial adoptees used the
scientific benefit to be derived from the internet in a manner comparable to
study. posting a flyer on a bulletin board.
The investigator uses the informed
consent process to explain how
Which of the following methods could be
respondent data will be transmitted from
considered a “best practice” in terms of
the website to his encrypted database
informing respondents how their answers
without ever recording respondents’ IP
to an online survey about personal
addresses, but explains that on the
information will be protected?
internet confidentiality cannot be
absolutely guaranteed.
Although there are no guaranteed methods Consent processes should also include a
to assure absolute confidentiality of discussion to emphasize that there is no
research data collected online, some way to guarantee absolute confidentiality