Chapter 36: Impact of Chronic Illness, Disability, or End of Life Care
.The nurse case manager is planning a care conference about a young
child who has complex health care needs and will soon be discharged
home. Whom should the nurse invite to the conference?
a.
Family and nursing staff b.
Social worker, nursing staff, and primary care physician c.
Family and key health professionals involved in child's care d.
Primary care physician and key health professionals involved in child's care: C A multidisciplinary conference is necessary for coordination of care for
children with complex health needs. The family and key health professionals who are involved in the child's care are included. The nursing staff can address the nursing care needs of the child with the family, but other involved disciplines must be included. The family must be included in the discharge conferences, which allow them to determine what education they will require and the resources needed at
home. A member of the nursing staff must be included to review the nursing needs of the child.
2.Lindsey, age 5 years, will be starting kindergarten next month. She has cerebral palsy, and it has been determined that she needs to be in a special education classroom. Her parents are tearful when telling the nurse about this and state that they did not realize that her disability was so severe. The best interpretation of this situation is that:
a.
This is a sign that parents are in denial.
b.
This is a normal anticipated time of parental stress.
c.
The parents need to learn more about cerebral palsy. d.
The parents are used to having expectations that are too high .: B Parenting a child with a chronic illness can be very stressful for parents. There
are anticipated times that parental stress increases. One of these identified times is when the child begins school. Nurses can help parents recognize and plan interventions to work through these Chapter 36: Impact of Chronic Illness, Disability, or End of Life Care
stressful periods. The parents are not in denial; they are responding to the child's placement in school. The parents are not exhibiting signs of a
knowledge deficit or expectations that are too high; this is their first interaction with the school system with this child. Chapter 36: Impact of Chronic Illness, Disability, or End of Life Care
.Approach behaviors are coping mechanisms that result in a family's move- ment toward adjustment and resolution of the crisis of having a child with
a chronic illness or disability. What is considered an approach behavior in parents?
a.
Are unable to adjust to a progression of the disease or condition b.
Anticipate future problems and seek guidance and answers c.
Look for new cures without a perspective toward possible benefit d.
Fail to recognize seriousness of child's condition despite physical evidence: B The parents who anticipate future problems and seek guidance and answers are demonstrating approach behaviors. They are demonstrating positive actions in caring for their child. Avoidance behaviors include being unable to adjust to a progression of the disease
or condition, looking for new cures without a perspective toward possible benefit, and failing to recognize the seriousness of the child's condition despite physical evidence. These behaviors would suggest that
the parents are moving away from adjustment or adaptation in the crisis of a child with chronic illness or disability.
4.Families progress through various stages of reactions when a child is diagnosed with a chronic illness or disability. After the shock phase, a period of adjustment usually follows. This is often characterized by:
a. Denial.
c.
Social reintegration.
b.
Guilt and anger. d.
Acceptance of child's limitations.: B
For most families, the adjustment phase is accompanied by several responses that are normally part of the adjustment process. Guilt, self-
accusation, bitterness, and anger are common reactions. The initial diagnosis of a chronic illness or disability often is often met with intense
emotion and characterized by shock and denial.
.The nurse case manager is planning a care conference about a young
child who has complex health care needs and will soon be discharged
home. Whom should the nurse invite to the conference?
a.
Family and nursing staff b.
Social worker, nursing staff, and primary care physician c.
Family and key health professionals involved in child's care d.
Primary care physician and key health professionals involved in child's care: C A multidisciplinary conference is necessary for coordination of care for
children with complex health needs. The family and key health professionals who are involved in the child's care are included. The nursing staff can address the nursing care needs of the child with the family, but other involved disciplines must be included. The family must be included in the discharge conferences, which allow them to determine what education they will require and the resources needed at
home. A member of the nursing staff must be included to review the nursing needs of the child.
2.Lindsey, age 5 years, will be starting kindergarten next month. She has cerebral palsy, and it has been determined that she needs to be in a special education classroom. Her parents are tearful when telling the nurse about this and state that they did not realize that her disability was so severe. The best interpretation of this situation is that:
a.
This is a sign that parents are in denial.
b.
This is a normal anticipated time of parental stress.
c.
The parents need to learn more about cerebral palsy. d.
The parents are used to having expectations that are too high .: B Parenting a child with a chronic illness can be very stressful for parents. There
are anticipated times that parental stress increases. One of these identified times is when the child begins school. Nurses can help parents recognize and plan interventions to work through these Chapter 36: Impact of Chronic Illness, Disability, or End of Life Care
stressful periods. The parents are not in denial; they are responding to the child's placement in school. The parents are not exhibiting signs of a
knowledge deficit or expectations that are too high; this is their first interaction with the school system with this child. Chapter 36: Impact of Chronic Illness, Disability, or End of Life Care
.Approach behaviors are coping mechanisms that result in a family's move- ment toward adjustment and resolution of the crisis of having a child with
a chronic illness or disability. What is considered an approach behavior in parents?
a.
Are unable to adjust to a progression of the disease or condition b.
Anticipate future problems and seek guidance and answers c.
Look for new cures without a perspective toward possible benefit d.
Fail to recognize seriousness of child's condition despite physical evidence: B The parents who anticipate future problems and seek guidance and answers are demonstrating approach behaviors. They are demonstrating positive actions in caring for their child. Avoidance behaviors include being unable to adjust to a progression of the disease
or condition, looking for new cures without a perspective toward possible benefit, and failing to recognize the seriousness of the child's condition despite physical evidence. These behaviors would suggest that
the parents are moving away from adjustment or adaptation in the crisis of a child with chronic illness or disability.
4.Families progress through various stages of reactions when a child is diagnosed with a chronic illness or disability. After the shock phase, a period of adjustment usually follows. This is often characterized by:
a. Denial.
c.
Social reintegration.
b.
Guilt and anger. d.
Acceptance of child's limitations.: B
For most families, the adjustment phase is accompanied by several responses that are normally part of the adjustment process. Guilt, self-
accusation, bitterness, and anger are common reactions. The initial diagnosis of a chronic illness or disability often is often met with intense
emotion and characterized by shock and denial.
